Saturday, January 28, 2006

January 28 - Waiting Game

Saturday morning, venti starbucks bold coffee and cinnamon streusel coffee cake. Ready to embrace the day. The usual weekend fare for life in the working world: laundry, cleaning, grocery shopping. However, it’s absolutely balmy outside (2 C), so am looking forward to doing some yoga and then heading off for a market walk to get the shopping completed. My sister Sal is going to head downtown and join me. There’s no snow and the sun is actually shining! Having my weekends completely knocked out for six months on treatment has provided me with a unique appreciation for being able to accomplish routine tasks on Saturday and Sunday. I appreciate every weekend moment.

Tried to obtain my 6 month post treatment pcr test results yesterday, but nurse Sharon is off on a business trip, my specialist has moved to Singapore and the back-up staff were unable to locate my chart. Ah well, I do recognize that this is just how things go sometimes, particularly on a Friday. Will call next week once Sharon’s back. In terms of my hepatologist, was aware that he was leaving and, in some ways, this works out well. Had been considering transferring to the liver centre within the health care institute where I’m employed and will now do so for follow-up care. When first diagnosed, I was reluctant to be seen at my place of work, as I wanted to maintain confidentiality until figuring out my own head space around all of this. Now, much more secure in myself, it just doesn’t matter. Our institute is among the best hepatitis c service providers in North America and I’ll transfer to them. So for now, play the waiting game. I feel so darn great that the thought of relapse is, well, it’s terrible. Am trying hard not to go there, but actually getting the pcr results will sure take away some edge. Just want to know.

Has been a busy month. Two birthdays: our eldest son James turned 25 (wow!!) and my youngest sister Sally also celebrating. We had a party for each at our home on separate weekends, so it’s been lots of dinners, cakes and presents. All wonderful! Big news this month is that James has been accepted into a program he’d wanted at the University of Toronto. We are so proud of him. It’s my alma mater, so this is especially nice for me. My grandparents were also U of T alumni. Carry on the tradition James! Pictures this month, therefore, are of the University of Toronto (http://www.utoronto.ca/), originally founded in 1827, so an eclectic mix of architectural styles covering a multitude of downtown city blocks, running from Spadina Avenue to University Avenue in East-West dimension and from Bloor Street to College Street North-South. It is just slightly North of us and we frequently take advantage of its proximity to walk through the beautiful campus.

Music on the discman this month: Damian Marley, Sean Paul, Shakira (solo en Espanol por favor), Be Good Tanyas (thanks James), Postal Service (thanks Sarah), and still some Imogen Heap and Stars (Ageless Beauty gorgeous).

Am planning a few days away in February on a Caribbean or Mexican beach. Midwinter in Toronto, this is an absolute mental health necessity. Ron’s too busy to get away right now, but I may go with my sister, or friend, or maybe for 3-4 days on my own. Am getting excited just thinking of the ocean, the sand, the music and especially, the warmth.

Today is January 28th – my mother died quite some time ago – today is her birthday. I will light a candle. I’m thinking of you, mom.

Sue

21 Comments:

Blogger SnoWav said...

Sue best of luck on the 6 month test.A few days in the tropics is big medicine for those living in the North country We are planing a trip with the whole fam in April to look at some land near Santa Tresea Costa Rica I figure I got one more house in me to build somewhere.My Mom's b-day is today the 29th .You sound great
Later jeff

8:34 AM  
Blogger Kerry Grace said...

Hi Sue:

Strangely, it's so nice to hear about your Starbucks morning!! Ha! Ah, the waiting . . . I think awaiting test results is one of the purest forms of torture. I agree to trust your body - you feel good and that is great - you have your result. I know it.

We had a warm and balmy day here yesterday, as well, and I woke this morning to rain and fierce wind - the weather around these parts is never dull; which is why a trip to the beach is always so lovely. I love looking at weather.com for beach forcasets: 8 days in a row of sunny and 82F! Enjoy! Nothing quite like ocean air and sunsets to restore the soul. Take the trip regardless of you companion - it is for you!

I am sorry to hear you lost your mother years ago and have been very keen these days to listening to others who have suffered through loss. You amaze me; you give little clues here and there throughout your blog and comments that there has been suffering and illness throughout your life, yet you remain so positive and full of hope and kind and comforting to others. If no one has told you before, that is a unique and wonderful gift you have - you truly help by your few kind and encouraging words. Your patients are lucky people - as are those of us whose blogs you visit just to drop some kind words of encouragement. I hope you know you are admired.

Kerry

9:21 AM  
Anonymous John said...

Hi Sue

Coffee keeps the virus away If your coming south Tulem Mexico is the nicest beach in the world 2 hrs south of cancun
Got the zero 7 cd last month relly enjoy it. Try The Black rebel Motorcycle cd
It is a brisk 74 here
enjoy your trip John

2:35 PM  
Blogger Sue, Toronto said...

Hi Snowav,

House in Costa Rica sounds extremely fine! Wow, you are a busy guy.

Am definitely feeling great. You are sounding really great too. Isn't is so nice to feel this way? Happy b-day to your mom!
Sue

3:43 PM  
Blogger Sue, Toronto said...

Hi Kerry,

I'm so glad you dropped by! Have been thinking about you and wondering how you're doing. You sound good. I hope that you are okay.

Thank you so much for such generous words. I love life. Don't know if understanding what is sad, or ugly, is ever actually achieved, but there is truly so much beauty. The eternal idealist and optimist (much to the dismay and frustration of many acquaintances, am sure). I wish for there to be much beauty in your life Kerry. Please take care,
Sue

3:56 PM  
Blogger Sue, Toronto said...

Hi John,

Definitely going with the coffee concept. Will check out Black Rebel Motorcycle cd - thank you, am always interested in new music.

Was down in Tulum (Mayan Riviera), two Winters ago with Ron and Phil and loved it. Phil had just studied the region in school, so it was great, with him providing tour guide review while we visited the ruins. Agree the beach is awesome. Am booking extremely last minute this year, so it will be interesting to see where I end up...

74 F only a distant dream right now. Am very jealous! Best wishes,
Sue

5:16 PM  
Blogger peter said...

Sue,

Good luck with the test results. Enjoy the trip -- as weird a winter as this has been (the whole freeze/thaw thing we've been getting in VT), it's still not summer weather.

And I love the Flickr photos!

Peter

10:33 AM  
Blogger Sue, Toronto said...

Hi Peter,

Agree - this is one weird winter. People ask why go away, with such warm February temperatures. As you say, it's still not summer weather and a sandy beach and the ocean are calling. My sister and I now booked for Cuba next weekend for seven days. The week won't pass quickly enough!

Glad you like the flickr. Am having a lot of fun with it. Hope you are doing well Peter. All the best,
Sue

8:49 AM  
Blogger SnoWav said...

Cuba sounds awesome and warm.We are headed 100 miles north and 6151 miles east should be exciting for us both have fun.Oh did I read your test were negative? Very COOL.
You get to go relax now and I get to go be on the edge of my seat.Later
jeff

3:49 PM  
Blogger Sue, Toronto said...

Hey Jeff,

Negative is definitely very cool. As is upcoming Cuba vacation. Your trip will be amazing - what an incredible experience! Will be watching. Take care,
Sue

6:13 PM  
Blogger Ron Metcalfe said...

Hi Sue
You're sounding good. And that you really are enjoying life. Best wishes for a negative PCR too. It will surely come.

Thanks for the photos of U of T - some I didn't recognise but others I did, bringing back bittersweet memories of my mis-spent youth when I had the unrealistic fantasy of becoming an architect. And before I realised I was much more interested in people than buildings.

Have a wonderful time in Cuba.

Wishing you well
Ron

1:00 PM  
Blogger SnoWav said...

How was Cuba? Our trip to Italy was a real adventure.The world is now different on our return.

9:11 AM  
Blogger Sue, Toronto said...

Hi Ron,

Sorry to be so long in replying - just back last weekend and work craziness all week.

Cuba was great! PCR is negative! Life truly a wonderful, progressive journey.

Glad you liked the UofT photos. It is interesting to see where we've come to from where we started. All part of the journey....
Best wishes,
Sue

8:12 AM  
Blogger Sue, Toronto said...

Jeff, congratulations to your entire family! Wow!! Watched in Cuba. Certainly a life-changing experience.

Cuba was great, thank you. My sister and I just chilled for a week down there: beach, walks, ocean. All good.

Hope that you are feeling better each day. Take care,
Sue

8:19 AM  
Blogger SnoWav said...

My energy level is going thru the roof,getting ready for sugar season and it looks like the land in Costa is going to happen .Yep things are a little different after our trip to Torino we seem to be close to the center of a unifying happening it's amazing, We are seeing for real what the big contest was intended to be It has had a huge effect on our town and state. Peace Out jeff

3:07 PM  
Blogger Sue, Toronto said...

Hi Jeff,

So good that the global unification concept is real. Takes things beyond the daily scope of affairs and on to a whole different dimension.

High energy is great! Sugar season also great. We lived in the Gatineau in Quebec for awhile when I was a kid - still remember the sugar bush season each Spring, eating the fresh, hot maple syrup poured on top of snow in a pie plate... may not sound too healthy, but it was delicious. Enjoy!
Sue

3:58 PM  
Blogger Haz said...

Hi Sue
picked up your comment on my blog - thank you, and for the link. I'm still finding my way around virtual reality and new hardware, but will put a link to your blog as soon as possible!
I hope your results come back clear - though I agree with kerry grace: you feel good... you have your result! The trek is a way of me postponing treatment, while doing something worthwhile... You have no idea how much I admire all of you who have gone through treatment. I had my courage all screwed up ready - and then was offered mono-interferon so I waited til the guidelines were updated. In the intervening time, my courage drizzled away...

5:27 PM  
Blogger Sue, Toronto said...

Hi Haz,

Thank you for stopping by my blog. The treatment thing is, I think, a very individual decision. With my genotype 3 and little liver damage, I wanted to give it a go before my 50's. For me, it was the right choice and I'm glad for it. It was no box of chocolates, but it was completely doable. Combo therapy definitely an easier choice to make than monotherapy would have been.

Am very impressed with your trekking! Am an avid walker. We don't even own a car -living downtown in Toronto don't need one and we just rent if we're going out of town -so I walk everywhere. Not only great for physical health, but also provides some cerebral review time that I cherish. Plus, there's so much to see that is otherwise missed. Happy trekking!
Sue

9:17 AM  
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5:22 PM  
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2:24 AM  
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7:49 AM  

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